MissKoolaid's Blog
So Let the Pitty Party begin....

Not like anybody is going to read this, but here is my attempt at explaining why camming is my JOB, and why I cannot have a normal job.

I AM GETTING SICK of all the judgement and "advice" from you guys.

I do wish that just because I am releasing this info, doesn't mean that I'm going to be treated like some poor girl, no. You are still going to respect me and I still AM going to be treated like a NORMAL human.



I HAVE HYDROCEPHALUS

Hydrocephalus is Latin for water on the brain. It simply means that my body can't drain cerebra spinal fluid properly, so I have an internal tube (called a shunt) doing it for me. My shunt also has a magnetic part that controls the flow of how much or how little, and the pressures in my head.

Along with this wonderful contraption in my head, I get massive headaches, head pains, migraines (whatever you wish to call them, point is IT HURTS LIKE A BITCH) Sometimes, I get in SO much pain, I cannot even leave my house, let alone my bed.

THIS IS WHY I CHOSE CAMMING AS MY JOB!

Camming can be done out of my home, I don't have to strain myself to get what I need to done, like clean. That being said, also runs into the fact why I don't live alone. I. Get. Really. Sick.To the point that sometimes I can't take care of myself, it's how I have to live, I will adapt.

Truth is: over 60% of k**s with Hydrocephalus will never be totally independent as an adult

NOW to prevent any further pity party ness, I'll stop there. If there is more interest, I'll add how I developed it, for now, it seems unnecessary.

CAN IT BE CURED?!

No, science hasn't got that far yet, I do hope it does in the future :) Or pain treatments become better.

WHAT CAN BE DONE/ WHAT DO I DO?

Get doped up on pain pills! uhhh NO! Pain pills actually do not touch this pain unless I take 3-4 times the dose. I really frown upon needing pills to manage my life, for others it may be needed, but not for me.

I have/am trying to build up immunity to the head pain, or any others that may come my way.

I do try natural remedy's such as White Flower, yes you will find some on my Amazon.. Get some for yourself, it's like Vicks on steroids, it works!

CAFFEINE: Many, if not all of you, have seen me with my bottle of soda, or cup of coffee. I do not drink this solely for personal pleasure. It actually helps me manage/ reduce my pain levels.

So please stop telling me that's why I'm gaining weight and that I should stop, there is a reason for it.



Posted by MissKoolaid 2 years ago
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6 months ago
I wasn't aware caffeine reduces pain levels. Nice. Have you looked into spicy food? I hear it does too
8 months ago
sorry you're having to go thru all this. wish you all the best in managing your pain.
2 years ago
Sadly no. Just having no life, other than camming and couponing, being a couch potato... And caffeine... Lots and LOTS of caffeine. Might try weed. FOR MEDICAL USE ONLY! Sorry long story there.... Lets say drugs aren't my thing. But... Nope... :/ going to the docs this week to talk about another treatment.
2 years ago
Hey have your doctor try you on a low dose of methadone, my wife had a brain tumor and ended up with a VP shunt, and for a year or so before they gave her methadone she couldn't get off the couch because of the pain. Now she can do things and has much reduced headaches.
2 years ago
Take Good Care of yourself my pretty friend!

Love and Hug

Wouter
2 years ago
We is AnonyMoooooooose!

We shall have to check your show out!

We will use our massive persuasive powers to aid & abet you!

What is that, you have never been abetted before? Hah we shall abet you like there's no morrow!
2 years ago
damn sorry to hear all that you always loook happy when your on cam(well unless some says something completely stupit...not me yet LOL).....i could never really judge anyone doing cam heck ...in this day and time a job is a job as long as your makin income...
ShinobiXVII
retired
2 years ago
:) Keep strong!
xxheat
retired
2 years ago
wow i feel bad for you. very glad i wasn't saying anything like that, but then that doesn't sound like what i'd say anyway. still kinda surprised you'd get such negativity looking like you do ;)
2 years ago
That sucks I'm glad You found something you can do to have an income
2 years ago
Yes..You dont need everyone telling you what to do..You have had and will always have my Respect..You are a great person..My life has been brighter since you have become part of it..I will never be able to thank you enough..As i have said to you before..You are 1 Of a kind..I have never known anyone like you...AJsims
2 years ago
gladly i never said anything like that BUT i'm suprised how much bull**** you get miss
2 years ago
You know talking about you makes me smile
But every once in a while

I wanna talk about me
Wanna talk about I
Wanna talk about number one
Oh my, me, mine
What I think, what I like, what I know, what I want, what I see
I like talking about you, you, you, you, usually but occasionally
I wanna talk about me
I wanna talk about me

:) Enough about you. When will I matter?

JK... If I can do anything... let me know.
2 years ago
i'm sorry baby girl i didn't know,daddy just wants to give you a hug and kiss to make feel better!!
2 years ago
*big big hugs*dont listen to wat those idiots say babe u do wat u have to do ppl need to understand and respect that
2 years ago
my sister has the same thing she got a shunt at 6 mounths so i respect that. dont listen to people
warpedbun...
retired
2 years ago
**HUGS**
♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥
2 years ago
You do a very great job. I have been in the Medical field for many years. I understand what you are going through.. Who cares what other people think. Do what you want to do.. If they do not like it here then here is a thought. Dont come to her room.. Keep doing what you are doing sweetheart.. You are very beautiful and have a wonderful personality..